Sunday, August 30, 2015

Our Journey to Valbona


We are so thankful that this year our dream became a beautiful reality.  We had heard so many times that Valbona was a spectacular destination deep in the Albanian Alps, but it has always seemed too remote and out of reach for our family.  It being our 10th wedding anniversary this year, Nik said that we should go to Valbona to celebrate.  It took us all summer to figure out how to get there, but now that we have gone, we have realized it is within reach and enjoyable for a young family on a limited budget.



Here’s how we did it. 

We used Catherine Boehne’s very informative website, www.Journeytovalbona.com to figure out how to get there, where to stay and what to do while there.  She has done a fantastic job of welcoming foreign visitors to the area, and made it very accessible, and indeed comfortable!!  The depth and breadth of local information on the website and there at the information center is a treasure to the visitor who would love to explore the woods and mountains without getting lost or being attacked by a bear. 

Getting there.

Tirana- Vau Dejes – Koman Ferry







We decided as a family that one of the highlights of the trip would be riding the Koman ferry, so we opted for that longer and more expensive route just for that.  We also decided that even though gas is outrageously expensive in Europe, we would still rather take our Landrover than navigate all the slightly complicated other ways to be taken there.  We were glad we did this as we used our rover a lot up there.  With kids, it’s really nice to have a car, and an SUV is nice to get over some of the bumpier parts of the road.  That said, if you don’t have an SUV, I have heard that the route through 
Kosovo is good, and for sure the asphalted roads in Valbona are also good. 

We left at about 7:30am from Tirana, heading for Shkodra.  Before you get to Shkodra, there is a well-marked turn off to the right leading you to Vau Dejes, and signs for the Koman ferry.  The roads till this point and a bit beyond are fine, the drivers are a bit mad on the other hand.  About half an hour out from Vau Dejes, the road starts to get a bit bumpier as you climb through the mountains, next to the lake.  You will face a good hour of bumpy, slow-going driving till you get to the ferry.  With one stop before Vau Dejes for a coffee, and another stop on the bumpy road next to the lake to throw some stones and dip our feet in the cool water, we managed to get to the Koman dam and ferry at 11.   I recommend getting to the ferry early so you can snag the best spots up on the deck.  The ferry was impeccably clean and well-staffed.  It was also the cheapest option for getting our car and our family to the other side.   We did reserve the spot for our car a day earlier using their website www.alpin.al. I would recommend as it does fill up.   You can purchase ridiculously priced drinks and snacks on board, or bring your own lunch as we did.  There are plenty of places on the deck or inside the ferry in the bar café area to sit and eat.  There are also really nice and clean bathrooms – the best I saw the whole trip!!  You’ll need to budget close to 2000 Lek for your vehicle, and 500 Lek a person older than 6.

The ferry left on time at noon, and the trip took 2 hours, so we were into the Fierza dock at 2 and finally on the road by 2:15.  I recommend sitting as near to the front as you can to get the best views (up near the Albanian Flag), but you can get up and move around, and you’ll have people coming to take pictures near you if you sit where there is a view.  At noon, the sun is really bright so definitely wear sunscreen and a hat, and if you find it a bit much, feel free to go to the lower deck for a break in the shade.  It is a very beautiful trip, so I highly recommend doing it.

Ferry dock at Fierza – Bajram Curri – Valbone







From the dock at 2:15, it was about a 40 minute ride on good roads to Bajram Curri, where you will take a sharp right through town to head out of town and on towards Valbone.  As you climb up into the Valbone Valley, it is a little slower going but the road is decent and is being worked on.  You will see a Relax Guest house (which I hear is a great place to stay) on your left, and soon after that, you will see signs for Rilindje on your left. 

Catherine mentions several different places to stay including, of course, her guest houses in Quku i Valbones: Rilindje, the Farmhouse, and the newest addition, the Rezidenca. We tried to get in at Rilindje, but as we were going back and forth on email and the phone trying to find the best fit for our family, we realized that one of the rooms at the hostel-style place, the Farmhouse, would work best for us.  For our family, it cost 36 Euros with breakfast to have a large room with a big double bed and bunk beds, and a bathroom down the hall, which ended up being used only by us.  It was comfortable for us and much roomier and more modern than I had expected from an old farmhouse in the mountains of Albania.  If you do end up staying at either the Rezidenca or the Farmhouse, you’ll need to budget a short walk through the woods to meals at Rilindje, which for breakfast was more like a small hike (about 40 minutes to an hour, depending on how long we spent picking blackberries along the way). For dinner, we had to have someone go ahead and drive down so we could avoid having to walk back uphill in the dark forest, and just drive home after.  So, you’ll definitely want to get a full tank of gas before you go, as you could drive quite a lot to get to trailheads or visit other places in the valley, and I didn’t see a gas station around.

Other places to stay would be the Relax (where you are guaranteed your own bathroom, and you have free camping and wifi), or there are several small and large operations beyond Quku I Valbones including Hotel Tradita, where it looks like President Nishani and Ambassador Lu have visited this year, and Burimi i Valbones, where we had a lovely dinner.  All of these places have little cabins and places for camping.

In all, you are going to be quite comfortable.  I never once felt like I was “roughing it”, though there is a need for a plumber in Valbone.  All the bathrooms we visited were similarly well outfitted with modern amenities that didn’t work well.  Leaks, and ill-fitting things all over the place…  

What to eat…








This is the part that is always close to my heart. ;-)  The breakfast at Rilindje was absolutely amazing!!!  There was a lovely coffee any way you like it, eggs to order, crepes, fresh bread and home-made jams.   They offer a sizeable packed lunch that if you are going to do some serious hiking, I would recommend you take, but otherwise, I recommend you skip lunch altogether as we did every day, and just have snacks and an early dinner.  The menu at Rilindje catered to both the foreign and Albanian audience.  We like traditional Albanian food, and found some great dishes.  I highly recommend the fresh trout and a dipping sauce called ngjyem as well as fries and a salad.  They did OK with the lamb and the suxhuk sausage is always welcome to our family.  They didn’t, however, have items that our family would have liked for some meals such as rice or pasta dishes.  However, we did really enjoy the complimentary bread with olive oil and salt!

I would recommend packing some apples, some dried fruit and nuts as well as crackers and cheese as there don’t seem to be any shops around.  I didn’t hear of any place except the Rezidenca that offers a small kitchenette, and I’m not sure how much serious cooking you could do there.  Plan to eat all your meals at the restaurants in the valley, or food you can carry in.  Drinks are available, but the great thing in Valbone is the free, cool local water that you can drink as is.  Pack water bottles that you can refill.

What to bring…

Where we stayed, there were towels, sheets and blankets provided.  Bring your toiletries and a mosquito repellant for your room.  Bring a good pair of walking shoes or hiking boots, and an extra pair of shoes, sandals and slippers for inside the house.  If not for yourself, your kids will be sure to need a change of shoes and socks at least once.  There are so many places that they could end up with wet shoes – the river, the trout pond – you name it, it happened to us.   Also in summer bring clothes for hot weather and hiking, but do pack at least one long-sleeved shirt and a sweat-shirt/light jacket for chilly mornings and evenings.   Pack swimming gear for a dip in the river.  
If you have a small child, do bring a carrier as this will be really useful. 

What to do…

Thankfully where we stayed there was a lot of information about trips around the valley, both near and far.  Because we stayed a small hike away from where we ate, we did a lot of walking the path between the two places, as well as berry-picking and rock climbing close by.  
The first full day, it was recommended to us to drive up the valley toward the trailhead for Theth to see the waterfall.  This was a good day activity.  We took the landrover much of the way.  Half of the journey was nicely asphalted, and the other half was a rocky river bed that was really slow-going, but doable in a landrover or other tough SUV.  Then, we walked, following the marked pathway to the waterfall.  We did go the wrong way once when we misunderstood the markings.  It’s great to have the markings and the kids had lots of fun exclaiming every so often “red mark! We’re on the right track!”  We saw lots of other visitors along the way.  We never felt too alone or lost staying on the path, and neither did we feel there were too many visitors clogging up the paths.  The walk to the waterfall is steep and rocky in parts, flat and pleasant in others. A good hike, even with little ones.  Our three year old was carried for this.   We enjoyed the feeling of accomplishment on getting up the the waterfall and we did some scrambling around near it, and then turned back, stopping at a small café for a Turkish coffee and yoghurt drinks (they also had soft drinks and juices, but I thought it would be cheaper and better on the environment to go with unpackaged drinks).   There were places to fill up your water bottles along the way, which we did several times.














The second day we decided to stay closer to Rilindje and try to explore the river.  We got our sandals and swim suits, and found a little friend to help us locate the best spots on the river to swim. A tiny hike and we were at the river.  Even in mid-summer, this mountain river is frigid!!!  It was painful, but so beautiful and you could get right back out and warm in the sunshine before trying again.  It was fun, even with little kids.

Going home…

We decided that since our return journey would take us close to Shkodra and our family hadn’t been there yet, we would detour a bit and see the castle.  We got up early for a 6:30 breakfast at Rilindje and were on the road by 7:30.  We made it to the Fierza ferry in plenty of time to get the best seats on the boat.  The return journey in the morning was really a lot more pleasant than the journey going as it was cooler and the sun was on our back and not on our faces.  I would recommend going to Valbone through Kosovo (cheaper and faster), and returning via the ferry and Vau Dejes. 

After getting off the ferry, we drove to Vau i Dejes and then took a different route towards Shkodra.  We were there by 1, at which time we stopped for a wonderful lunch at a massive castle-esque establishment across the river from the fortress we were to visit.  After a rest and lunch, we made our way to the castle.  The entrance fee was 200 lek for foreigners and Albanians alike, kids were free.  
It was hot up there mid-day in summer!!  Hats and plenty of water is a must.  There isn’t a great deal to see and now there are many restricted areas that before I remember visiting, but still there are fantastic views all around and you can imagine history as you make your way around the grounds.  There is a restaurant up there if you need a break, and a museum. The bad thing about coming at this time was the museum was technically closed (2pm-5pm the keeper of the museum takes his lunch break), but the lady at the gift shop called him and he came and opened it up just for us.   It is a tiny museum, but fun to visit with kids. 

Back at the car, we had finished all our water and so went back into town in search of cold water.  Once we got that at a little store, we were on our way back to Tirana via the very scary highway with the impatient drivers and the 100 or more furniture stores. 

We were home by 6 and so thankful for good showers and that Nik’s dad had made dinner for us!


We were so blessed by our time there and highly recommend it to families.

Wednesday, June 25, 2014

First Big Miracle

 Before we left for the U.S., we had been told that the surgery had been scheduled to take place at the Nationwide Children's Hospital with a team of doctors coming over from The Ohio State University The James Cancer Center.  When we got there on Wednesday, we received word that the Children's Hospital did not want to deal with us at all because we didn't have insurance. We were hoping to apply for Medicaid through Ohio and have our bills covered that way, but it wasn't certain that we would be accepted.  Living in Albania, we didn't have any U.S. insurance plan.  When we heard this, we really wondered what our Father God would do!!  We had ALL come all that way only to be told that it wasn't going to happen.  Our scheduled CAT scan at the Children's Hospital the day after we arrived didn't take place and instead we waited for our first appointment at the James Cancer Center with Dr. Matthew Old, who was to be Elsa's surgeon, not knowing what would happen.  While we waited and rested, we tried to get our Medicaid application passed, with no success.  That night, though, we got a call from our amazing coordinator over at the James who told us that she had made a call to someone high up at the Children's Hospital explaining who we were and why we should be allowed to get treated anyway, and we were accepted. That was a huge burden lifted.  On Friday morning at the James, we had a great visit and felt confident that the doctor had a good plan and Elsa was in experienced hands. 

The healing journey begins at the Grigorenkos

As I shared in my previous post, we were on faith headed to Ohio to seek treatment for Elsa's desmoid tumor which had recurred very rapidly after having it removed here in Albania.  I was hoping to be able to write more when we were there, but I wasn't able.  It really was an amazing journey of blessing all the way, and now we are back here in Tirana THANKFUL beyond words for healing and grace poured over us day by day.  Elsa continues to do very well and look beautiful!  The doctors did an amazing job of removing the tumor and God did an equally amazing job of filling in all the gaps so she didn't have to have reconstructive surgery.  There are many, many stories from our time there, but I want to be faithful to write as much down as I can remember by way of encouraging myself and anyone who reads this blog that God is really is watching over the details of our lives, he can work in a sin-soaked world to effect much good and he can and does use each one of us as his hands and feet to bring the blessing.

The first hands and feet hand-picked by our Father that loved on us throughout our long time in the U.S. were that of Drs. Don and Margaret Grigorenko.  Mrs. G as I like to still call her picked our tired gang up at the airport in Columbus and drove us to their home.  Elsa, who had been a good traveler most of the trip was very unhappy and cried and cried, so Mr. G stopped at the first available McDonalds and we all got to experience this classic American restaurant together.  The playground was amazing and Mrs. G took care of little Elsa, helping her up and down the slide over and over again. We all enjoyed ice cream cones dipped in chocolate.  This was to be the first instance of Mrs. G lightening my load of mothering and in her characteristically loving, patient and good-humored way caring for each of my children in turn. 


The Grigorenkos came into this story through my childhood friend Corrie, who is their oldest daughter.  As soon as Corrie saw that we might be headed to Columbus, she volunteered her parents home to us. She then called her parents and asked them if it would be OK. ;)  The Gs were warmly welcoming to us, had the perfect home out in the country with lots of space for our young rambunctious city slickers.  What was beautiful for me was that I know and love the Gs from when I was young in Nepal - 20 years before.  Mr G taught me all I needed to know about dos and typing tutor when I was in middle school. This was our first formal introduction to computers and it was a memorable experience.  Mrs. G helped a lot with our girl guides troup, amongst other things.  The Gs also had spent time in Dandeldhura in far west Nepal where I was as a very young child and so can relate to my stories of kaphel berry picking and the mud houses and the adventures getting there and back, fording rivers in big old buses when there weren't bridges, etc.  I felt so, so at home and reconnected with parts of my history that I missed.  What I didn't know, was that the Gs were now professors at Cedarville University and had a great interest in Anthropology and Linguistics - two of my favorite subjects.  The G's library was like being in a candy shop for me!!  I didn't know whether to read one of the many ethnographies, or the Nepali bible or hymnal or the far side comics, or the books on linguistics, or mission...on and on. I could have read just about every book in their house if I got the chance.  The Gs had little reminders of Nepal all over and also made us some great Nepali (or Indian) curry on a couple occasions.  The kids really loved their Nepali madal (drum) and we introduced them to some folk songs on it. 

Elsa was thrilled to make a new friend in the Gs' dog Kimber or, "Timbers" as she would call him.  He was the perfect dog for Elsa as she just wouldn't give him a break.  She would follow him everywhere, including right into his crate, where she'd cuddle up to him.  She would also try to hand feed him!! Our dog would definitely not have been so well-mannered about all this attention.


With Mrs. G at the Jame's Cancer Center waiting room.  We were thankful too for the knowledge that the G's had of this hospital and caring for those with cancer.

Thursday, April 10, 2014

Desmoid tumor returns

A dear family friend gave me a bag 2 summers ago that has a verse on it that reminds me of a reality for each of us walking the Christian life, and ever so real to us now.

Proverbs 3:6 He shall direct your paths.

I write this as I continue to experience the many miracles of grace after finding out just weeks after the first surgery that the tumor had returned.

The first of many things I am thankful for was God's tangible presence during the MRI that confirmed our suspicion that the tumor was back. Our heavenly father heard and answered very specific requests after we ran into trouble with finding a vein and then the canula was defective, so couldn't stay in. I was at peace throughout despite all the unknowns.

The surgeon who we trusted from Greece also happened to be available within a couple days, so we scheduled a consult and likely surgery right away as that seemed our only option.

A day before the surgery a good friend of ours asked what it would take to get to the US for care and, knowing we had no insurance or money for travel, I said it would take a miracle. I also truly believed that we were in good hands in Albania and didn't want to spend resources beyond our wildest dreams just for the sake of going abroad.

A series of miracles later, including the planned surgery being called off at the last minute by Elsa spiking a high fever, and a wonderful providence of Elsa's tissue sample being carried to the US and personally delivered for testing by an oncologist to a major children's cancer research hospital, to the recourses coming together for us to make the trip, to the turn of events that took us away from where we had at first hoped we'd get treatment, and directed us to another hospital far more equipped to handle this delicate surgery in just the perfect part of the country where my parents have a home and we have many friends and family relatively close, we find ourselves unable to say with certainty what will happen tomorrow, but able to trust the master's grand plan and the pieces that make it. Throughout this journey we have seen God moving hearts to give and opening new doors immediately after closing doors we had wanted to walk through.

We are exceedingly thankful for the miracle of all 5 of us flying to a major research hospital in the US to have Elsa be cared for by a doctor with 30+ years treating desmoid tumors, hosted by Nepal missionary friends from 25 years ago in London and Ohio.

I think of the story of the hungry little boy who brought all his lunch to Jesus, only to be shocked and amazed to see those meager loaves and fish feed thousands of people.  Family, friends, and even those I've never met have sacrificed their lunch and brought it to us in our moment of great need and it has indeed effected the miracle God had planned.

Looking to see His good hand move and direct and protect as we head into these next weeks of surgery and recovery.

A month ago I was really having my doubts about whether God was there and whether he was involved in the concerns of my life. Well, now I'm more convinced than ever that God is there and He is good even though the storms of life rage around us. He is indeed as the hymn goes "a shelter in the time of storm".

Sunday, March 30, 2014

Desmoid Tumor, round 1

I want to document our journey with this rare form of tumor that we first discovered last November. I want to trace and retrace the unexpected twists and turns of grace and provision and miraculous moving of mountains we have seen so far and expect to see more of as we move forward.

Last November a good friend of the family, our adopted brother Gazi was around for dinner and noticed a bump on Elsa's nose. I had noticed something not right myself a couple days before that but had dismissed it thinking it was just a bit of extra baby fat. We moved forward to ask our family physicians what it might be and asked doctors in the US too. Most seemed to think it was a cyst that if on an adult could be taken care of in the clinic. We went on to the main hospital to see what they could do and they called for an MRI.

Elsa had to be drugged to sleep for the procedure and she remained under the influence (sleepy or seemingly drunk) 24 hours at least. The results were that it was likely a non-malignant tumor that would involve a complicated surgery because it was in Elsa's maxillary sinus.

We went back to the main hospital for advice and we were directed to go right away for a biopsy by one doctor and told by another they didn't want to touch the case. In hindsight, the biopsy probably would have been wise, but we were afraid of Elsa being cut open in a hurry and by someone who didn't know what to do with such a small child. We elected to try to find the best surgeon we could to remove the tumor.

A couple of weeks later we found ourselves waiting for the recommendation of a maxillo-facial surgeon at the Italian private hospital before heading off to consult with another maxillo-facial surgeon at the Greek hospital. It became abundantly clear where we were going to be better cared for when we got to the Greek Hospital and met their Greek surgeon who flies in for surgeries every few weeks. Dr Lazarou was someone we felt comfortable with right away and we got Elsa ready for surgery that afternoon.

The surgery was over quickly and Elsa recovered amazingly fast. We went home relieved, yet knowing that our fight wouldn't be over till a biopsy was run on the tissue samples.  Within a month I think we had the official word that the tumor was aggressive desmoid fibromatosis which was so rare no-one really knows a standard way to handle this, but the literature had 10 cases mentioned in total, for which surgical removal of the tumor was sufficient in most cases so we felt at peace.

Saturday, March 29, 2014

Our new adventure with Elsa

This is the first time that this Tirana mama has blogged about Elsa. It's been a couple years since I last posted and Daniel and Abby have grown and we have two new members in our household. Nik's father known as 'babi' to us and 'gjyshi' to the children came to live with us when Nik's mother passed away two years ago. Two months after that little Elsa was born and has been a great source of hope and joy.

We have been sent out on a new adventure lately seeking for a cure for a rather nasty tumor that we noticed on Elsa's nose last fall. I want to document on this blog how I see God doing only things He could do. We have seen him work in amazing ways already and are expecting even greater things.

Thursday, August 18, 2011

Trip to the country

We have been quite the homebodies I must admit. The last time we ventured out of Tirana was when Daniel had just turned 1 and we went to Kosovo for a week long mission trip - he was so sick he was hospitalized that time. So, now we are afraid even to stay out of the house for afternoon naps lest it interrupt our perfectly balanced household routine. Any time we're invited anywhere I carefully calculate how we can get home in time for naps and bedtime... Well, we broke this routine and I'm glad of it! We had the most wonderful 3 that turned into 4 days in the beautiful mountains of Dibra in a village called Zerqan staying at the home of one of our dear friends Dr Afrim. So much happened there that the perfectionist in me hesitates to start writing about it lest I not capture every last wonderful thing. I've resisted that urge now to share with you just a few snapshots of why we had such a great time!

The MOUNTAINS
I adore mountains as I was raised in the Himalayas. I loved all the climbing up and clambering down we did while in Zerqan and I loved watching little city girl Abby showing me she had inherited my mountain goat legs as she ran down some pretty rough patches on our walks. This picture shows the valley we came through to drive up to the village of Zerqan. The water there was clean and crisp and we could drink it right from the tap without worrying about it. The air was much cooler and everything smelled clean - maybe because the air was cleaner? Just what our tired city lungs needed!

The PEOPLE

The people, and in particular the woman we met in Afrim and Genci's family in Zerqan were to be admired. They were strong, hospitable, cheerful and never complained. They cooked everything from scratch and cared for their cow, donkey and chickens - not to mention their men and children so faithfully. They made the most wonderful food for us and even fed us two of their family chickens for a special meal. They had gardens, chickens, about 17 beehives, a donkey and a cow to care for and yet their house was sparkling! They made the most wonderful bread every day and even a very light cornbread that I want to get the recipe for. I was impressed with the depth of understanding and the high level of education that these ladies had even as they completed the most basic of household tasks. It was a joy to share community and cook with them and have conversation with them over the time we were there.
I loved the sense of community and how everyone in the family seemed to know what work to get on with alone or in a group, and then all would gather around to share a hearty meal.

The FOOD

Fabulous!! What I was impressed with the most was the many uses of milk and what a treasure a cow is, yet how much work goes into caring for just one cow. The matriarch of the family, Afrim's mother, seemed to be the most tied to the care of this cow. She would walk the cow to pasture and home again twice a day - the trip to pasture and back taking an hour at least. She would milk the cow in the morning and afternoon. The patriarch, Afrim's father, got up early at 4 am to go and cut fresh morning grass for the cow. When I went down to the barn to see the animals with the children I felt so good for this cow as she munched happily on fresh cut green grass. I was also so happy to see that the calf that she has was allowed to nurse and took half of her milk supply. My children got used to the taste of "cow milk" rather than UHT or pasturized milk - served piping hot. They loved the milk curds and the yoghurt that was prepared from the milk and I adored the clarified butter in so many of the foods that was served. The smell of warm ghee overwhelmingly reminds me of the village and great food in Nepal.
While I was there, I was trained in the art of rolling out byrek dough. This is an important skill that all young brides should already know, but I hadn't learned yet. I felt like I was getting the hang of it, but know I have a long way to go to churn out good byrek like the bride of that household did!

The FARM

This was a mini-farm in a sense. There were gardens and fruit trees and chickens and a cow and a donkey, bees and a dog and my kids loved interacting with all this. Abby really enjoyed picking plums and stuffing her cheeks with them and Daniel especially loved running around after the dog and just exploring the backyard. I think the city kids quite took to country living!! :) It warmed my heart to enjoy it along with them as I really think of myself as a country kid even though I've lived the majority of my life in the city.

I was hoping to include more pictures but my technical skills aren't up to it so I'll just post a link to those who are interested in viewing pictures of our little trip.
https://picasaweb.google.com/Lizzygrezda/TripToZerqanSummer2011?authkey=Gv1sRgCIyGrv6AgNbBUg